dysautowhat?
dysautonomia can kiss my ass. yesterday my blood pressure was low as i sat, feeling it, in my primary's office. no water in sight, plus i wouldn't take my mask off in there if you paid me. in my community clinic for disabled baddies, henceforth the hive, we will test for covid/have a masking policy, and also will have snacks and beverages so people can actually work thru symptoms when they're in our care. it's gonna look different. well, not all that different if you been to a community acupuncture clinic. if i can't start my own here, i need to move someplace and work in one because that's the calling. i feel it every time i go to my book case, make a cup of herbal tea with fresh ginger slices, or do some needles on my legs. this is medicine. we can't carry on any other way. people need spaces where they can go and reset, connect, and heal. we will have hella recliners and herbal teas for just about anything you can think of. hot water on tap. a jar of salt because: dysautowhat.
dysautonomia, autonomic failure, or autonomic dysfunction is a condition in which the autonomic nervous system does not work properly. this condition may affect the functioning of the heart, bladder, intestines, sweat glands, pupils, and blood vessels. -Wikipedia
"may affect" for me means "is affecting" many of those systems. my special flavor of dysautowhat is called orthostatic hypotension:
orthostatic hypotension (also called postural hypotension) is a condition in which your blood pressure quickly drops when you stand up after sitting or lying down. a type of low blood pressure, this can make you feel dizzy or faint. symptoms usually improve when you change your medications or move into an upright position more slowly...orthostatic hypotension symptoms can be unsettling. they may even be dangerous if you lose your balance, fall or pass out. symptoms often improve when you change how you move into a standing position. - Cleveland Clinic
mornings are brutal. the worst. i don't do them. it's a non-negotiable, unless there's a real viable reason. beside that, salt. and i try to not be standing all that much. when i do, i move around to keep my qi and blood moving and avoid getting faint. i also use a cane a lot of the time.
exercise is important, but very specific movement on land is the way to go. i gotta be careful not to overextend or hold positions too long. there is a pilates method for hypermobility that i am about to dig into, because aqua therapy is not always accessible. the pool at physical therapy is the best because it's heated. i will pay the copay that the tyrannical trash bill is soon imposing on medicaid recipients to go to that pool. not gonna be able to do it as frequently, probably, but i'll get in there. i discussed this today with my friend peter and he was like, we gotta skip this middle man bullshit and get you women the hive built, complete with a therapeutic pool. he sees the vision. he is gonna practice asking a millionaire for money for a good cause, and report back. because as we all know funding from gov programs for a project such as this is no longer existent. maybe just maybe new york will maintain funds for something of this sort, but it's likely gonna be independent investors with compassion and faith that we gonna make something beautiful when given the space to heal and flourish. once we get flowing, we will have legit streams of income--podcast, series, classes and apothecary for the public to come and support us. we just need the startup funds.
the p in pj stands for a lot of things. it stands for peace, patience, prosperity, perspective, pain (ugh), and prioritization of the women in my life. this comes after a post-. my queer poly heart just can't do that anymore. w0men, especially sick and disabled women of which i am one, need protecting. so i cast spells of protection around women i know, women i'd like to know, and women all across this globe whom i will never know. well, maybe in a million lifetimes i would come to know each woman and her story, but for now, just those who come thru the doors at the hive, ready to float and heal together.
peace and blessings --
pjb